Evaluation of the effectiveness of a psychological rehabilitation program aimed at preventing social deprivation in primary school children with cancer
DOI:
https://doi.org/10.21638/spbu16.2024.402Abstract
This article presents the experience of testing a psychological rehabilitation program in the prevention of social deprivation of children of primary school age with cancer and assessing its effectiveness. The presented program of psychological rehabilitation is implemented at the stage of long-term treatment in a medical hospital, as well as during the education of a child of primary school age with cancer in a hospital school. The goal of the psychological rehabilitation program is to increase the success of the reintegration of a child of primary school age with cancer into society after long-term treatment by developing social skills and reducing the level of anxiety. As a result of testing this psychological rehabilitation program, the following scientific and practical results were obtained: in children of primary school age with cancer, already during long-term treatment in a medical hospital and training at a hospital school, the level of social adaptation and social activity increased, and the level of social desirability decreased. Children of primary school age with cancer, because of a psychological rehabilitation program, began to talk more openly about their experiences, emotions, and feelings. All these results can become the basis for successful social reintegration of children of primary school age with cancer after long-term treatment. The scientific and practical result of this study was the development and experimental testing of the implementation of a Model of integrated medical, psychological, and pedagogical care in preparing children of primary school age with cancer for reintegration into society after long-term treatment in a medical hospital. The developed program of psychological rehabilitation can be implemented in the work of clinical psychologists working in children’s medical institutions, as well as in the work of educational psychologists in hospital schools for the purpose of psychological and pedagogical preparation of children of primary school age with cancer for reintegration into society after long-term treatment in medical hospitals.
Keywords:
primary school age, psychological rehabilitation, social deprivation, cancer, social reintegration
Downloads
Download data is not yet available.
References
Литература
Долуев И. Ю., Зорина Е. С., Соловьев Д. А. Выявление актуальных запросов психолого-педагогического сопровождения семей с детьми, перенесшими онкологические и гематологические заболевания // Перспективы науки и образования. 2023. № 1. С. 451–468.
Зорина Е. С. Психолого-педагогическая практика в госпитальной школе: от первого знакомства до формирования дидактического портфеля // Педагогическое образование: история становления и векторы развития: материалы Международной научно-практической конференции, посвященной 100-летию открытия педагогического факультета при 2-м МГУ, Москва, 14–15 октября 2021 года. М.: МПГУ, 2022. С. 1419–1423.
Касаткин В. Н. Когнитивные характеристики и проблемы поведения у детей с острым лимфобластным лейкозом, завершивших лечение по протоколу МБ-2008: пилотное исследование // Вопросы практической педиатрии. 2015. Т. 10, № 5. С. 7–13.
Касаткин В. Н. Физическая и психологическая реабилитация детей с опухолями задней черепной ямки. М.: МЕДпресс-информ, 2023.
Куртанова Ю. Е., Белозерская О. В., Бурдукова Ю. А., Щукина В. Д. Проблемы реинтеграции в социум после продолжительного лечения детей младшего школьного возраста с онкологическими заболеваниями // Вопросы психического здоровья детей и подростков. 2022. № 4. С. 64–74.
Куртанова Ю. Е., Бурдукова Ю. А., Щербакова А. М., Зорина Е. С., Белозерская О. В., Лыкова Н. С., Щукина В. Д., Бриллиантова А. А. Когнитивные, эмоциональные и социальные особенности детей младшего школьного возраста с онкологическими заболеваниями // Новые психологические исследования. 2023а. № 3. С. 108–126. https://doi.org/10.51217/npsyresearch_2023_03_03_06
Куртанова Ю. Е., Бурдукова Ю. А., Щербакова А. М., Зорина Е. С., Белозерская О. В., Лыкова Н. С., Щукина В. Д., Бриллиантова А. А. Психосоциальная реабилитация в детской онкологии // Вопросы психического здоровья детей и подростков. 2023b. № 4. С. 108–118.
Прихожан А. М. Психология тревожности: дошкольный и школьный возраст. 2-е изд. СПб.: Питер, 2009.
Рожков М. И. Теория и практика развития ученического самоуправления в профессиональной школе: дис. … д-ра пед. наук. Казань, 1989.
Рубинштейн С. Я. Психология умственно отсталого школьника: учебное пособие для студентов педагогических институтов. М.: Просвещение, 1986.
Рубинштейн С. Я. Экспериментальные методики патопсихологии. М.: ЭКСМО-Пресс, 1999.
Румянцев А. Г., Володин Н. Н., Касаткин В. Н., Митраков Н. Н. Концепция медицинской, нейрокогнитивной и психолого-социальной реабилитации детей с онкологическими и гематологическими заболеваниями // Вестник восстановительной медицины. 2015. № 1. С. 65–71.
Хаин А. Е., Клипинина Н. В., Никольская Н. С., Орлов А. Б., Евдокимова М. А., Стефаненко Е. А., Кудрявицкий А. Р. Опыт создания и работы психологической службы в детской гематологии/онкологии // Консультативная психология и психотерапия. 2014. Т. 22, № 1. С. 106–126.
Шариков С. В. Педагогическая поддержка образовательных возможностей детей, находящихся на длительном лечении в медицинских стационарах // Альманах Института коррекционной педагогики. 2020. № 40. С. 22–42.
Bakula D. M. The relationship between parent distress and child quality of life in pediatric cancer: A meta-analysis // Journal of pediatric nursing. 2020. Vol. 50. P. 14–19. https://doi.org/10.1016/j.pedn.2019.09.024
Bronfenbrenner U. Toward an experimental ecology of human development // American Psychologist. 1977. Vol. 32, no. 7. P. 513–531. https://doi.org/10.1037/0003-066X.32.7.513
Chantziara S., Musoro J., Rowsell A. C., Sleurs Ch., Coens C., Pe M., Suciu S., Kicinski M., Missoten P., Vandecruys E., Uyttebroyeck A., Dresse M.-F., Pluchart K., Ferster A., Freycon C., van der Werff ten Bosch J., Rohrlich P., Benoit Yv., Darlington A. S., Piette C. Quality of life of long-term childhood acute lymphoblastic leukemia survivors: Сomparison with healthy controls // Psychooncology. 2022. Vol. 31, no. 12. P. 2159–2168. https://doi.org/10.1002/pon.6060
Desjardins L., Barrera M., Schulte F., Chung J., Cataudella D., Janzen L., Bartels U., Downie A. Predicting social withdrawal, anxiety and depression symptoms in pediatric brain tumor survivors // Journal of Psychosocial Oncology. 2019. Vol. 37, no. 1. P. 22–36. https://doi.org/10.1080/07347332.2018.1535531
Fischmeister G., Riedl D., Sanio G., Bogendorfer Th., Holzner B., Rumpold G., Nickels A., Licht Th., Sperl W. Rehabilitation for children and adolescents after cancer: importance and implementation in Austria // Memo. 2021. Vol. 14. P. 278–283. https://doi.org/10.1007/s12254-021-00729-x
Jones А., Anderst А., Harman J. The invisible barrier: Providing end of life support to pediatric oncology families during COVID-19 // Journal of Psychosocial Oncology. 2021. Vol. 39, no. 3. P. 313–315. https://doi.org/10.1080/07347332.2021.1902453
Lozano-Mosos J. S., Colina-Matiz S., Leal J. H., Muñoz-Vargas P. T., Lemus Ortegón D. P. Experience in the integration of a tale within the pediatric oncology environment // Journal of Psychosocial Oncology. 2023. Vol. 41, no. 5. P. 642–644. https://doi.org/10.1080/07347332.2022.2163213
McCubbin H. I., Joy C. B., Cauble A. E., Comeau J. K., Patterson J. M., Needle R. H. Family stress and coping: A decade review // Journal of Marriage and the Family. 1980. Vol. 42, no. 4. P. 855–871. https://doi.org/10.2307/351829
Peikert M. L., Inhestern L., Bergelt C. Psychosocial interventions for rehabilitation and reintegration into daily life of pediatric cancer survivors and their families: A systematic review // PLoS One. 2018. Vol. 13, no. 4. Art. no. e0196151. https://doi.org/10.1371/journal.pone.0196151
Pfeiffer S. M., Hutchinson A. D. The efficacy of cognitive interventions for improving cognitive performance and academic achievement in children after cancer treatment: A systematic review // Journal of Psychosocial Oncology. 2018. Vol. 36, no. 2. P. 238–258. https://doi.org/10.1080/07347332.2017.1399954
Prevatt F. F., Heffer R. W., Lowe P. A. Review of school reintegration programs for children with cancer // Journal of School Psychology. 2000. Vol. 38, no. 5. P. 447–467. https://doi.org/10.1016/S0022-4405(00)00046-7
Purrezaian M., Purrezaian Н. Group psychodrama for children with leukemia: A brief report // Journal of Psychosocial Oncology. 2022. Vol. 40, no. 1. P. 131–135. https://doi.org/10.1080/07347332.2021.1900484
Salem H., Johansen C., Schmiegelow K., Winther J. F., Wehner P. S., Hasle H., Rosthøj S., Kazak A. E., Bidstrup P. E. FAMily-Oriented Support (FAMOS): development and feasibility of a psychosocial intervention for families of childhood cancer survivors // Acta Oncology. 2017. Vol. 56, no. 2. P. 367–374. https://doi.org/10.1080/0284186X.2016.1269194
Schulte F. Social attainment in survivors of pediatric central nervous system tumors: a systematic review and meta-analysis from the Children’s Oncology Group // Journal of Cancer Survivorship. 2019. Vol. 13. P. 921–931. https://doi.org/10.1007/s11764-019-00808-3
Schulte F., Wurz А., Russell K. B., Reynolds K., Strother D., Dewey D. Social adjustment and repressive adaptive style in survivors of pediatric cancer // Journal of Psychosocial Oncology. 2018. Vol. 36, no. 3. P. 274–286. https://doi.org/10.1080/07347332.2018.1431754
Thorsteinsson T., Helms A. S., Adamsen L., Andersen L. B., Andersen K. V., Christensen K. B., Hasle H., Heilmann C., Hejgaard N., Johansen Ch., Madsen M., Madsen S. A., Simovska V., Strange B., Thing L. F., Wehner P. S., Schmiegelow K., Larsen H. B. Study protocol: Rehabilitation including Social and Physical activity and Education in Children and Teenagers with Cancer (RESPECT) // BMC Cancer. 2013. Vol. 13. P. 1–7.
References
Bakula, D. M. (2020). The relationship between parent distress and child quality of life in pediatric cancer: A meta-analysis. Journal of Pediatric Nursing, 50, 14–19. https://doi.org/10.1016/j.pedn.2019.09.024
Bronfenbrenner, U. (1977). Toward an experimental ecology of human development. American Psychologist, 32 (7), 513–531. https://doi.org/10.1037/0003-066X.32.7.513
Chantziara, S., Musoro, J., Rowsell, A. C., Sleurs, C., Coens, C., Pe, M., Suciu, S., Kicinski, M., Missotten, P., Vandecruys, E., Uyttebroeck, A., Dresse, M.-F., Pluchart, C., Ferster, A., Freycon, C., van der Werfften Bosch, J., Rohrlich, P., Benoit, Yv., Darlington, A.-S., Piette, C. (2022). Quality of life of long-term childhood acute lymphoblastic leukemia survivors: Comparison with healthy controls. Psychooncology, 31 (12), 2159–2168. https://doi.org/10.1002/pon.6060
Desjardins, L., Barrera, M., Schulte, F., Chung, J., Cataudella, D., Janzen, L., Bartels, U., Downie, A. (2019). Predicting social withdrawal, anxiety, and depression symptoms in pediatric brain tumor survivors. Journal of Psychosocial Oncology, 37 (1), 22–36. https://doi.org/10.1080/07347332.2018.1535531
Doluev, I. Yu., Zorina, E. S., Solov’ev, D. A. (2023). Identification of current needs for psychological and pedagogical support for families with children who have suffered from oncological and hematological diseases. Perspektivy nauki i obrazovaniia, 1, 451–468. (In Russian)
Fischmeister, G., Riedl, D., Sanio, G., Bogendorfer, T., Holzner, B., Rumpold, G., Nickels, A., Licht, T., Sperl, W. (2021). Rehabilitation for children and adolescents after cancer: importance and implementation in Austria. Memo, 14, 278–283. https://doi.org/10.1007/s12254-021-00729-x
Jones, A., Anderst, A., Harman, J. (2021). The invisible barrier: Providing end of life support to pediatric oncology families during COVID-19. Journal of Psychosocial Oncology, 39 (3), 313–315. https://doi.org/10.1080/07347332.2021.1902453
Kasatkin, V. N. (2015). Cognitive characteristics and behavioral problems in children with acute lymphoblastic leukemia who completed treatment according to the MB-2008 protocol: A pilot study. Voprosy prakticheskoi pediatrii, 10 (5), 7–13. (In Russian)
Kasatkin, V. N. (2023). Physical and psychological rehabilitation of children with tumors of the posterior cranial fossa. Moscow, MEDpress-inform Publ. (In Russian)
Khain, A. E., Klipinina, N. V., Nikol’skaya, N. S., Orlov, A. B., Evdokimova, M. A., Stefanenko, E. A., Kudryavitskii, A. R. (2014). Experience in the creation and operation of a psychological service in pediatric hematology/oncology. Konsul’tativnaia psikhologiia i psikhoterapiia, 22 (1), 106–126. (In Russian)
Kurtanova, Yu. E., Belozerskaya, O. V., Burdukova, Yu. A., Shchukina, V. D. (2022). Problems of reintegration into society after long-term treatment of primary school children with oncological diseases. Voprosy psikhicheskogo zdorov’ia detei i podrostkov, 4, 64–74. (In Russian)
Kurtanova, Yu. E., Burdukova, Yu. A., Shcherbakova, A. M., Zorina, E. S., Belozerskaya, O. V., Lykova, N. S., Shchukina, V. D., Brilliantova, A. A. (2023). Cognitive, emotional, and social characteristics of children of primary school age with cancer. Novye psikhologicheskie issledovaniia, 3, 108–126. https://doi.org/10.51217/npsyresearch_2023_03_03_06 (In Russian)
Kurtanova, Yu. E., Burdukova, Yu. A., Shcherbakova, A. M., Zorina, E. S., Belozerskaya, O. V., Lykova, N. S., Shchukina, V. D., Brilliantova, A. A. (2023). Psychosocial rehabilitation in pediatric oncology. Voprosy psikhicheskogo zdorov’ia detei i podrostkov, 4, 108–118. (In Russian)
Lozano-Mosos, J. S., Colina-Matiz, S., Leal, J. H., Muñoz-Vargas, P. T., Lemus Ortegón, D. P. (2023). Experience in the integration of a tale within the pediatric oncology environment. Journal of Psychosocial Oncology, 41 (5), 642–644. https://doi.org/10.1080/07347332.2022.2163213
McCubbin, H. I., Joy, C. B., Cauble, A. E., Comeau, J. K., Patterson, J. M., Needle, R. H. (1980). Family stress and coping: A decade review. Journal of Marriage and the Family, 42 (4), 855–871. https://doi.org/10.2307/351829
Peikert, M. L., Inhestern, L., Bergelt, C. (2018). Psychosocial interventions for rehabilitation and reintegration into daily life of pediatric cancer survivors and their families: A systematic review. PLoS One, 13 (4), e0196151. https://doi.org/10.1371/journal.pone.0196151
Pfeiffer, S. M., Hutchinson, A. D. (2018). The efficacy of cognitive interventions for improving cognitive performance and academic achievement in children after cancer treatment: A systematic review. Journal of Psychosocial Oncology, 36 (2), 238–258. https://doi.org/10.1080/07347332.2017.1399954
Prevatt, F. F., Heffer, R. W., Lowe, P. A. (2000). Review of school reintegration programs for children with cancer. Journal of School Psychology, 38 (5), 447–467. https://doi.org/10.1016/S0022-4405(00)00046-7
Prikhozhan, A. M. (2009). Psychology of anxiety: Preschool and school age. 2nd ed. St. Petersburg, Piter Publ. (In Russian)
Purrezaian, M., Purrezaian, H. (2022). Group psychodrama for children with leukemia: A brief report. Journal of Psychosocial Oncology, 40 (1), 131–135. https://doi.org/10.1080/07347332.2021.1900484
Rozhkov, M. I. (1989). Theory and practice of developing student self-government in a vocational school. Doctoral dissertation (Education). Kazan. (In Russian)
Rubinshtein, S. Ya. (1986). Psychology of a mentally retarded schoolchild: A teaching aid for students of pedagogical institutes. Moscow, Prosveshchenie Publ. (In Russian)
Rubinshtein, S. Ya. (1999). Experimental methods of pathopsychology. Moscow, EKSMO-Press Publ. (In Russian)
Rumyantsev, A. G., Volodin, N. N., Kasatkin, V. N., Mitrakov, N. N. (2015). The concept of medical, neurocognitive and psychosocial rehabilitation of children with oncological and hematological diseases. Vestnik vosstanovitel’noi meditsiny, 1, 65–71. (In Russian)
Salem, H., Johansen, C., Schmiegelow, K., Winther, J. F., Wehner, P. S., Hasle, H., Rosthøj, S., Kazak, A. E., Bidstrup, P. E. (2017). FAMily-Oriented Support (FAMOS): Development and feasibility of a psychosocial intervention for families of childhood cancer survivors. Acta Oncologica, 56 (2), 367–374. https://doi.org/10.1080/0284186X.2016.1269194
Schulte, F. (2019). Social attainment in survivors of pediatric central nervous system tumors: A systematic review and meta-analysis from the Children’s Oncology Group. Journal of Cancer Survivorship, 13, 921–931. https://doi.org/10.1007/s11764-019-00808-3
Schulte, F., Wurz, A., Russell, K. B., Reynolds, K., Strother, D., Dewey, D. (2018). Social adjustment and repressive adaptive style in survivors of pediatric cancer. Journal of Psychosocial Oncology, 36 (3), 274–286. https://doi.org/10.1080/07347332.2018.1431754
Sharikov, S. V. (2020). Pedagogical support for educational opportunities for children undergoing long-term treatment in hospitals. Al’manakh Instituta korrektsionnoi pedagogiki, 40, 22–42. (In Russian)
Thorsteinsson, T., Helms, A. S., Adamsen, L., Andersen, L. B., Andersen, K. V., Christensen, K. B., Hasle, H., Heilmann, C., Hejgaard, N., Johansen, C., Madsen, M., Madsen, S. A., Simovska, V., Strange, B., Thing, L. F., Wehner, P. S., Schmiegelow, K., Larsen, H. B. (2013). Study protocol: Rehabilitation including Social and Physical activity and Education in Children and Teenagers with Cancer (RESPECT). BMC Cancer, 13, 1–7.
Zorina, E. S. (2022). Psychological and pedagogical practice in a hospital school: From the first acquaintance to the formation of a didactic portfolio. In: Pedagogicheskoe obrazovanie: istoriia stanovleniia i vektory razvitiia: materialy Mezhdunarodnoi nauchno-prakticheskoi konferentsii, posviashchennoi 100-letiiu otkrytiia pedagogicheskogo fakul’teta pri 2-m MGU, Moskva, 14–15 oktiabria 2021 goda. (pp. 1419–1423). Moscow, Moscow Pedagogical University Press. (In Russian)
Downloads
Published
2025-02-21
How to Cite
Kurtanova, Y., Shcherbakova, A., Burdukova, Y., Zorina, E., Belozerskaya, O., Lykova, N., … Brilliantova, A. (2025). Evaluation of the effectiveness of a psychological rehabilitation program aimed at preventing social deprivation in primary school children with cancer. Vestnik of Saint Petersburg University. Psychology, 14(4), 588–604. https://doi.org/10.21638/spbu16.2024.402
Issue
Section
Empirical and Experimental Research
License
Articles of "Vestnik of Saint Petersburg University. Psychology" are open access distributed under the terms of the License Agreement with Saint Petersburg State University, which permits to the authors unrestricted distribution and self-archiving free of charge.
